We created this blog to help us document the story of Malia starting at 29 weeks in utero. There have been and continue to be struggles for Malia and for us. It is evident to us, as you will see, that the power of prayer is mighty and God does love us and hear our prayers. We welcome and invite you to follow along with us. Though lengthy, start from the bottom to get the entire story so far.
Wednesday, June 9, 2010
This was a busy week for the baby girl who still remains in the hospital. (see recent 3 posts)
Still not making any breakthroughs on feeding, she started the last week on the same pace as the prior week. A full bottle feeding would sneak in from time to time but for the most part Malia gets really tired when eating and is exhausted about half way through. We presume much of this is attributed to the fact that her feedings are thickened and thus harder to swallow. Slightly discouraging since previously it had seemed like she might have been trending toward improvement. This still being her key to coming home, we would really love to get back to those full feedings so we can have her home finally. On Monday (June 7) there was discussion of a feeding tube (aka "G-tube") for the first time as well. This would allow the food to go directly into the stomach - removing the possibility of irritating the airway and would presumably allow her to come home without taking the full day of bottle feedings. This would need to be preceded by an upper GI study to examine her digestion and ensure she is a good candidate for the G-tube. This was tentatively scheduled for Friday, only to be delayed later due to urgent eye surgery (more on that later).