We created this blog to help us document the story of Malia starting at 29 weeks in utero. There have been and continue to be struggles for Malia and for us. It is evident to us, as you will see, that the power of prayer is mighty and God does love us and hear our prayers. We welcome and invite you to follow along with us. Though lengthy, start from the bottom to get the entire story so far.

Sunday, June 27, 2010

Discharge on the horizon!?

With the G-tube now in and functional there has been some talk of discharge for a couple days now.  There are still some technicalities to get taken care of, but it seems like the NICU is planning for a Tuesday (June 29th) discharge for Malia!!!  Seems almost surreal to us, the idea of not having her in the hospital anymore.  Not having to make that drive to see her only to despise having to leave her.  Not having to coordinate childcare (as often ;) ).  There's honestly not much we will miss about having her there.  We cannot wait to have her home!  It's going to be so awesome.

Ok, I'll admit it there is a little bit of anxiety around us becoming her primary care givers.  Not that we haven't had practice raising sweet little girls, but with this one we'll also be taking on more medical responsibilities.  So we all went to visit her today and started getting hardcore training on the things we need to do.  That G-tube thing is pretty funky by the way...  it has an extra burp tube that seriously makes her burp out of the tube when you put it in.  If you thought real burps smelled bad..... (just kidding..)  Also, learning more about the special mixture of milk she has to take.  We're having to pull some of our old math skills out of the archives to figure out the correct number of calories and thickness of her milk (different depending on if it's done through bottle or G-tube).  Keeping track of her different meds with the associated dosage and times.  Learning how to properly listen to her heart with stethoscope so we can identify irregularities if they arise and respond accordingly with vagal maneuvers in the event that the high heart rate (SVT) occurs.  Those are some of the things we have to keep tabs on.  If you're looking for something to pray about please feel free to keep us in prayer regarding this challenge.  Don't be mistaken, we're soooooooo happy she is coming home and we'll be able to hold her, love on her, and get this family thing back to where it left off.  Just some final details in the next couple of days and if everything goes as planned we'll be taking her home Tuesday sometime.