We created this blog to help us document the story of Malia starting at 29 weeks in utero. There have been and continue to be struggles for Malia and for us. It is evident to us, as you will see, that the power of prayer is mighty and God does love us and hear our prayers. We welcome and invite you to follow along with us. Though lengthy, start from the bottom to get the entire story so far.

Sunday, April 25, 2010

Happy 2 week birthday to Malia

I loved letting Alison hold Malia yesterday, but they still are only wanting one "handling" per day so I watched the girls while momma enjoyed.  Today it was MY turn to hold my baby girl!

I think we have maybe seen her accidentally twitch into a smile once or twice before.  Today we got about 5-10 minutes of off and on smiles.  Sure it might have been delirium from getting off her narcotics (fentanyl) or maybe a long string of gas... but to me it seemed that she was smiling when I talked to her.  Wow!  Wow, wow, wow!  I was eating up every bit of it.

There are smaller babies on the NICU but Malia is definitely the smallest baby I have ever held.  Having dropped about 3 lbs since birth (which was a good thing) she had a very small gain today bringing her up to about 3lbs 11oz (which is also a good thing - meaning she is starting to process the milk they are pouring into her stomach).  Malia's birth weight was about 6lbs 8oz, so yea we have seen a lot of change in the past 2 weeks.  Malia still doesn't have great eye control though it does seem she tracks to my voice occasionally like it appears in the photo to the left.

Tomorrow they will be doing another ultrasound on her head/brain to recheck the cysts that were observed previously.  Also an EKG will take place to check on her heart.  We don't know any details, but we have heard reference to the cardiologist possibly seeing something that might elude to the cause of the initial problem(s) with her heart.