We created this blog to help us document the story of Malia starting at 29 weeks in utero. There have been and continue to be struggles for Malia and for us. It is evident to us, as you will see, that the power of prayer is mighty and God does love us and hear our prayers. We welcome and invite you to follow along with us. Though lengthy, start from the bottom to get the entire story so far.

Wednesday, June 23, 2010

G-tube surgery

Since the eye surgery (June 11th) there have not been many changes.  Much of the same feeding, not feeding, on oxygen, off oxygen, back on oxygen.  Without the necessary progress on her oral feeding, the recommendation was made to go through with the direct stomach feeding tube (aka G-tube).  The surgery took place on Wednesday, June 23rd.  Although we did not want it to have to come to this, we were in agreement that it was necessary given the lack of progress on oral feeding.  The surgery itself brought little to no anxiety for me and Alison.  It was the fact that she needed to be intubated and sedated that gave us great concern.  The past 2 procedures, where those issues took place, the complications were less than fun and we did not want Malia or ourselves going through resuscitation-etc.  None the less we went through with it.  We prayed hard and had the opportunity to share our concerns with just about every and any doctor or specialist that would be involved.

As a side note, during surgery prep I learned that Malia had an episode of SVT (heart rate in the 280's) the prior day.  Was definitely surprised to find that out, via some side comment I picked up from a nurse, but was happy to hear that it was quickly resolved via the doctor sticking his finger in her throat.

The surgery went off without a hitch!  What a relief and blessing to not have any craziness post-surgery.  With this surgery completed it now opens up the possibility that Malia could be coming home soon.  Next step is to get her back on track with normal food in her stomach and gaining weight again.

Bonding with Malia


Some bonding time with Malia before she goes to surgery. What a sweet pea!