I've wanted to do more journaling than I have done in the past week or so. Now back to work, my daily routine has somewhat returned to what was normal before March 31st. But let's just cut to the chase.... I love this day!! We're so unbelievably thankful for what God has done with our Malia!
We spoke with a good friend of ours today, Dr. Bob. Sure he might not consider us friends but that's beside the point, we love this guy. :) We talked through many of the ongoing issues and corresponding treatments Malia is going through with Dr. Bob. According to our friend, the diagnosis for the heart syndrome (Wolff-Parkinson-White syndrome (WPW)) has "been dismissed". Say what!? The situation with the "brain cysts" has changed and they aren't really even recognizing any such cysts at this point, rather only seeing white matter which they have not much concern about. Are you freaking kidding me?! This is HUGE news! Which makes me wonder if I have some sort of brain problem right now because sitting here I can barely wrap my mind around how awesome this is! Further, he went on to tell us that they intend to take her off of the heart medication (propranolol) prior to discharge as well. .... ......... .......... ......... ...................... ......... . .............................. ............ . No, that's not morse code for something else I meant to write - it's me at a loss for words. Seriously, take a look at the Birth-day post and the corresponding picture then come back to this one.
Be amazed - I am. We are. This baby was being pumped with air, meds, blood and grasping on for dear life. I can't help but echo what Alison wrote at the end of that Birth-day post - "God has something BIG! in store for this little one." If you have been praying for this little one, and our family, know that your prayers have been answered and please pause to give thanks. As I do that right now myself I can't hold back tears. I think that "something BIG" Alison referred to is already in motion - impacting the hearts and minds of the people bearing witness to her life as it unfolds. Can I get an Amen?! AMEN!