We created this blog to help us document the story of Malia starting at 29 weeks in utero. There have been and continue to be struggles for Malia and for us. It is evident to us, as you will see, that the power of prayer is mighty and God does love us and hear our prayers. We welcome and invite you to follow along with us. Though lengthy, start from the bottom to get the entire story so far.

Friday, May 7, 2010

Can I get an AMEN?!

I've wanted to do more journaling than I have done in the past week or so.  Now back to work, my daily routine has somewhat returned to what was normal before March 31st.  But let's just cut to the chase....  I love this day!!  We're so unbelievably thankful for what God has done with our Malia!


We spoke with a good friend of ours today, Dr. Bob.  Sure he might not consider us friends but that's beside the point, we love this guy. :)  We talked through many of the ongoing issues and corresponding treatments Malia is going through with Dr. Bob.  According to our friend, the diagnosis for the heart syndrome (Wolff-Parkinson-White syndrome (WPW)) has "been dismissed".  Say what!?  The situation with the "brain cysts" has changed and they aren't really even recognizing any such cysts at this point, rather only seeing white matter which they have not much concern about.  Are you freaking kidding me?!  This is HUGE news!  Which makes me wonder if I have some sort of brain problem right now because sitting here I can barely wrap my mind around how awesome this is!  Further, he went on to tell us that they intend to take her off of the heart medication (propranolol) prior to discharge as well.  ....  .........     ..........     .........     ...................... ......... .  .............................. ............ .   No, that's not morse code for something else I meant to write - it's me at a loss for words.  Seriously, take a look at the Birth-day post and the corresponding picture then come back to this one.  
Be amazed - I am.  We are.  This baby was being pumped with air, meds, blood and grasping on for dear life.  I can't help but echo what Alison wrote at the end of that Birth-day post - "God has something BIG! in store for this little one."  If you have been praying for this little one, and our family, know that your prayers have been answered and please pause to give thanks.  As I do that right now myself I can't hold back tears.  I think that "something BIG" Alison referred to is already in motion - impacting the hearts and minds of the people bearing witness to her life as it unfolds.  Can I get an Amen?!  AMEN!

12 comments:

  1. Wow, just amazing! Praise the Lord! Praying for that day of bringing her home to come soon!

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  2. AMEN - Amen - AMEN!! We are all so thankful. Praise the Lord!

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  3. That's totally awesome! Great news and a Happy Mother's Day too!!!

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  4. What joyous tears fill my eyes and thanksgiving fills my heart for all that the Lord has done through these circumstances in that tiny little body. We continue to pray blessings on Malia and thanksgiving to the God of all arrangements, including that "random" (?) ultrasound, and all the well trained and dedicated medical staff that have brought us to this day. Most of all we are so thankful to you, Harley and Alison, for allowing us the privilege of praying with you daily for a miracle the depth and breadth of which we could not have even imagined. This post today has made my day, my week, and maybe even my year! With love, Janie for all the Tates

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  5. Rhonda L HinrichsMay 9, 2010 at 6:06 AM

    A great big one! And .... a huge amt of thanks above too!

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  6. AMEN! Such incredible news. I have tears just thinking about the BIG ways she has affected those around her already.

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  7. Yay! I don't even know you (we are friends of a friend), but know exactly how you feel as we also have a preemie. Tears fill my eyes with joy of this news! God is good!

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  8. What an incredible gift! This had me in tears of joy for you guys!

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  9. Ellis & NancyMay 11, 2010 at 12:45 PM

    What a mighty God we serve, what a mighty God we serve.... AMEN & AMEN!!! All our love to all of you, Ellis, Nancy and all the Van Meters, DeGaetanos, & Pryors!!!!!

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